Rare Congenital Disorders of Fibrinogen


U.S. and other international collaborative efforts to develop rare bleeding disorder registries will help increase the understanding of the natural history of these disorders and explore the molecular defects involved, potentially leading to safer and more effective fibrinogen replacement products. Registries also will assist clinicians in determining appropriate preventive management strategies.

Individuals researching the pathophysiology and/or molecular basis of CFD are listed below.